JCCSG

The event will take place on Wednesday, ???? ?????, March 2, 2016, 7:15pm promptly, At the headquarters of the Lev Rochel Bikur Cholim of Lakewood, 93 Prospect Street, Lakewood, NJ 08701, Parking available in adjacent parking lot.

Featuring:

*Updates in Inflammatory Bowel Disease (IBD), a patient perspective:

Dr. James George, M.D.

Clinical Instructor Medicine, Gastroenterology, Internal Medicine, Mount Sinai Hospital

*Treatment Approaches in IBD, Options to Consider:

Dr. Asher A. Kornbluth, M.D.

Clinical Professor Medicine, Gastroenterology, Internal Medicine, Mount Sinai Hospital

Dr. Jonathan E. Teitelbaum, M.D.

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For more information, or any help feel free to contact us, at 718-63-JCCSG (718-635-2274) or by email: [email protected].

Or the Lev Rochel Bikur Cholim of Lakewood at 732-905-3020 or by email: [email protected]

You can also Register Now! At ?? http://online.ccfa.org/Lakewood2016

The Overwhelming demand and the positive feedback has inspired us to forge ahead with subsequent events

Which will be held on Tuesday, ???? ??????, November 18, 2014 – 7:30pm Promptly, At The Pointe Plaza Hotel, 2 Franklin Ave., Brooklyn NY 11249

As in previous events, we will have educational presentations. For adults our program includes:

Opening Statement:

Dr. Simon Lichtiger, M.D.

Associate Professor of Medicine, Director of the Inflammatory Bowel Disease (IBD) Program; Columbia University Medicine Center

Take Charge Managing:

• Current treatments and surgical approaches in IBD
• Risks and benefits of these treatment approaches
• Steps to take when re-evaluating the treatment plan if/after current therapy fails
• How to advocate for optimal IBD care

Dr. Suneeta Krishnareddy, MD

Assistant Professor of Medicine, Gastroenterology, Columbia University Medicine Center, New York-Presbyterian Hospital

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IBD and Fertility:

Dr. Elana Maser, M.D.

Assistant Professor Medicine, Gastroenterology Mount Sinai Hospital

For pediatric our program also includes:

?Pediatric IBD and Developing & Growth:

Dr. Nanci Pittman, M.D.

Assistant Professor Pediatric Gastroenterology Mount Sinai Hospital

Followed by a Three Doctor Panel, and a Question and Answers Session, Moderated by Dr. Lichtiger.

Please call or email with your questions in advance as we will only be able to accept some questions at the event.

For any other comments and suggestions, please feel free to contact us anytime by phone or email.

Also, please help us spread the word. You probably know some people who are not on our mailing list… please forward this email to them.

We look forward to keeping you updated.

To all our friends,

Here are some additional details regarding our next “JCCSG Education Symposium and Support Event“. Due to overwhelming demand, we have scheduled for the first time an inaugural education program for parents and caregivers with reference to current topics in Pediatric IBD.

This event will take place next week Monday, ???? ??????, October 28, 2013. At The Spinka Hall, 1466 56th St., Borough Park, Brooklyn NY 11219. Starting at 7:30pm Sharp!

As in previous events, we will have educational presentations. For adults our program includes:

Treatment Approaches in Inflammatory Bowel Disease (IBD):

Dr. Asher Kornbluth, M.D.

Clinical Professor of Medicine,

Gastroenterology Mount Sinai Medical Center

*

Understanding Inflammatory Bowel Disease (IBD):

Dr. Rabin Rahmani, M.D.

Physician at Brooklyn Gastroenterology and Endoscopy Associates.

Director of Medical Education and Research Department of Gastroenterology of Maimonides Medical Center

*

For Pediatric IBD:

Understanding Pediatric IBD & Growth:

Dr. Keith J. Benkov, M.D.

Chief, Division of Pediatric Gastroenterology

Director, The Children’s IBD Center at Mount Sinai

*

We will have a question and answer session led by a three doctor panel.

Please call or email with your questions in advance as we will only be able to accept some questions at the event.

For any other comments and suggestions, please feel free to contact us anytime by phone or email.

Also, please help us spread the word. You probably know some people who are not on our mailing list… please forward this email to them.

We look forward to keeping you updated.

Supplied by “Yesh Tickva“

LYME DISEASE

It is possible for one tick bite to transmit several strains of Lyme called co-infections, which may account for increased severity of symptoms and/or persistence of illness. Each co-infection often requires its own treatment

TESTING for TICK-BORNE ILLNESS

Lyme disease needs to be diagnosed clinically, using your medical history in conjunction with one or more of the available tests. There are a number of tests for these illnesses, however, they are not sufficiently sensitive to be conclusively diagnostic. Your test may come back negative by CDC standards, yet you may still be positive for Lyme disease. Some of the basic tests are:
1. ELISA (not very reliable)
2. C6Peptide
3. IgG and IgM Western Blots (best done at Stony Brook University Medical Center Laboratory (631) 444-3824/7965 or IgeneX 800-832-3200)
4. PCR (DNA analysis) (best done at IgeneX)
5. CD57 (best done at LabCorp)
6. Co-infection testing e.g. ., Ehrlichiosis, babesiosis, bartonellosis staphlococcus etc..

Two schools of thought, exemplified by the organizations International Lyme & Associated Diseases (ILADS) and the Infectious Disease Society of America (IDSA) have developed with regards to the diagnosis and treatment of Lyme disease. The root of the controversy, put simply, is the lack of the reliable biological markers and diagnostic tests for the disease. In addition, it is also difficult to determine whether a patient has been fully cleared of the disease. Therefore, arguments over diagnosis and treatment approaches will continue.

A patient can test negative and still have Lyme disease.

Many physicians have not received education on chronic Lyme disease in medical school, since Lyme is still being researched.

SYMPTOMS

EARLY STAGES: Symptoms may appear from 48 hours to several weeks after a bite from an infected tick.
• Flu-like symptoms: fatigue, muscle and joint pain, headache, fever, chills, swollen glands, sore throat, stiff neck

LATE STAGE (CHRONIC /SECONDARY LYME): Symptoms may occur weeks, months, or even years after the bite, and the symptoms may come and go cyclically.
• Profound fatigue
• Continued flu-like symptoms with swollen glands, low-grade fever
• Chills, sweats, and skin flushes
• Night sweats
• Migrating arthralgias (swollen or painful joints)
• Muscle pain, weakness, paralysis
• Severe headache, stiff neck, backache
• Distortion of smell or taste
• Sensitivity to lights, sounds, motion, odors, blurred vision or loss of sight
• Cognitive dysfunction, difficulty organizing or making decisions, memory loss, anxiety, sleep disorders, panic attacks, depression, psychiatric disorders
• Irregular heartbeat, palpitations, heart block, chest pain, difficulty breathing

TREATEMENT

Lyme disease is treated with antibiotics, given orally, by injection (intramuscular), or intravenously.

Treatment of an early diagnosis is at least six to eight weeks of antibiotics or until the symptoms completely subside (which can be up to a year).

Treatment for an infected person having undiagnosed Lyme for months or years will need a longer course of antibiotics. In some severe neurological cases, IVIG is used to support the immune system during treatment.

Especially in patients who have had previous treatment or inadequate treatment (inadequate doses or inadequate length of treatment), Lyme can form an L-form or a cyst. The infection then becomes resistant to antibiotic therapy. Specific treatment is often required.

It is vital that the body not see the same antibiotic treatment for too long, as resistance, cysts, and side effects develope. Consider changing dose, timing, and drug regularly to keep the germs responsive to therapy.

Alternative and complimentary custom treatments such as a variety of probiotics, vitamins, mineral, herbs, and homeopathics are essential to support and build the immune system while undergoing heavy antibiotic treatment. Chronic illness is famous for depleting vitamin stores. In chronic cases of patients with absorption problems iv can be used for vitamins and minerals.

A combined approach is the key, treating bacteria and all affected organs at the same time.

Do non aerobics exercise every other day. Get out on fresh air. Make sure to oxegenate your body as bacteria cannot live with oxygen.

Heat packs and a hot bath in baking soda or Epsom salt are known to be helpful for pain relief, as heat kills bacteria. Avoid refined sugar and simple carbohydrates as well as chemicals.

A diet rich in raw or steamed veggies and lean protein, coupled with elimination of nightshade foods are vital to improving overall health.

Newest symptoms tend to leave first as older ones leave last.

Be an educated consumer and find a Lyme literate practitioner that follows ILADS guidelines. Your excellent pediatrician or PCP may not have enough knowledge about late stage Lyme disease .Be careful when looking for an infectious disease doctor as many follow IDSA guidelines.

Yesh Tickva! Hope and Daven, be metzapeh leyeshuas Hashem!

Good luck to your Hishtadlus. Contact Yesh Tickva for any advice and support.

A Giten Erev Shabbos,

Here we are with some more details of our next JCCSG Education & Support event.

The event will take place on Monday ???? ????, January 7, 2013. at The Continental Hall, 75 Rutledge St. Williamsburg, Brooklyn NY 11211. starting at 7:30 pm Sharp!

We will have the honor that the Famous Dr. James F. Marion, MD, Gastroenterology, Associate Clinical Professor of Medicine at Mount Sinai Hospital. (of the well known Dr. Present & Dr. Chapman office) will be attending an addressing the issue of: “IDB – Everything you wanted to know but were afraid to ask…”

Followed by a Questions & Answer forum!

You can call us or email us with your questions, and we will take some questions live as well.

Followed by “IBD and Nutrition” by Dr. Joshua Zell, RD, Kingsbrook Jewish medical Center.

The program includes: *Role of Nutrition, *Overview of Diets used by IBD Patients, *Eating well with IBD, *Tools and Nutrition resources.

Followed by a “Yiddish” spiritual speech of a highly respected Ruv. (more details to follow)

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For comments and suggestions feel free to contact us anytime by phone or email.

Also we would like to ask again and again.. please help us spread the word… you probably know people which are not on our mailing list.

Have a Good Shabbos! and will keep you updated!

newsreader, you can see my info (phone number and email) above…

A Giten,

The Program will start at 8:00pm SHARP! Please be so kind and stick to this time thereby encouraging everything to run timely!

Since we got lots of phone calls and emails of people with these questions due to some unclear advertisements, we would like to ask you to please spread this info to all Patients & their families you know.

Reminder: You can still email us [email protected] or call us 718-63-JCCSG (718-635-2274) with your questions for Dr. George.

We are cordially awaiting your presence!

We are proud to announce about our Third JCCSG Education & Support Event!

This event will be in conjunction with Bikur Choilim of Kiryas Joel. It will be held in Monroe NY, on February the 16th.

Please reserve the date. & Spread the word!

Details will follow

WOW! its was a major success with over 300 people participated.

CD’s and DVD’s will be sold in the future, anticipate further details. if you are also in need of the first event, please Respond via email.

We would like to ask you again, advertising is costing us a fortune, so if you know of any Crohn’s patient, let them know about us, he should be able to be on our mailing list.

Dr. George will talk about .“How to treat IBD rationally”. he will cover the medical AND the diet field.

Followed by a Question & Answer forum! You can call us 718-63-JCCSG (718-635-2274) or email us @ [email protected] with your questions. And will try to take some questions live as well.

Harav Eisneberger Shlita will talk in Yiddish in the subject of .“You have Crohn’s, Crohn’s doesn’t have you…”.

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??? ????? ???????, ?? ???? ???????

??? ?????? ???????????? ????”?

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bh18,

Maybe you can explain me better what the issue is I will be able to discuss it with a doctor today.

Burech HaShem we are finally here again!

We are happy to announce the great news that there will be Iy”h another Education & Support event arranged by the “Jewish Crohn’s & Colitis Support Group”.

The event will take place on Monday Parshes Toldos, November 21, in Williamsburg, Brooklyn NY.

A top Gastroenterologist will attend and speak, followed by a well known highly respected Ruv Shlita.

More details will follow Iy”h!

Reserve the night!

Also we would like to ask you to please spread the word about it (you probably know some people who are not on our mailing list nor they read this CR)

For comments and suggestions (or to help us) feel free to contact us anytime by email or phone.

I did it already a few times, but… i have to do it ince more! I gotta say again that I never knew how powerful the CR on YWN is, a lot of people contacted us regarding the CD’s saying they saw it on YWN (thats besides the people who were looking for some help or tips & got to us thru YWN/CR). So I would like to thank again the YWN staff for making us the opportunity to spread it here.

Hatzlucha I’Brucha!

We added two new locations where you can get the CD’s of the event.

*In Kiryas Yoel:

Weinberger

7 Siget Ct. #101

Monroe NY 10950

845-783-7644

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*In Monsey:

Fabric Place

42 Main St.

Monsey NY 10952

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*Other Areas:

Contact us @ 347-450-0274 or send us an email to [email protected] and will try to work it out.

~

*Price: $10 (just to cover the expenses!)

Again we’re asking you that after listening to it, if you have any comments please share with us

And also we would like to ask you again to please spread the word about the CD’s (we don’t have everyone on our mailing list).

It is TODAY!!!

I gotta say again that I never knew how powerful the CR on YWN is, since I posted this threads lot of people contacted us. So 1st I would like to thanks the YWN staff for making me the opportunity to spread it here.

Please forward this info to whoever you know.

U/D:

2nd Speaker:

Mr. Eliezer Gruber, CN

Educator, researcher and founder/developer of the Nutri-Supreme Research line of supplements

Lectures widely on the role of nutrition in achieving and maintaining optimal health.

The ones with the Alloy wheels