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Thanks for the reference. They do state in the end of the article that the inheritance patterns still reamain complicated. I am no expert in genes but if you search all websites out there it all states a no grader than a 8% risk for a child of a T1 to get diabetes.
Health, can you please provide the source of your statement? The following is from the JDRF website. Please note the second paragraph where it states that only 5% people are at risk if a parent, sibling, or child has the disease.
Is type 1 diabetes hereditary?
Researchers are still trying to get a clear picture about how genes and environmental factors interact to determine a person’s risk of developing type 1 diabetes. Forty percent of everyone in the United States carries one or more of the HLA genes (human leukocyte antigen) which lead to increased risk of type 1 diabetes. To be at increased risk, however, an individual needs two copies of these genes, one from each parent.
One in 400-500 people in the general population develops type 1 diabetes, but 1 in 20 (5 percent) people are at risk if a parent, sibling, or child has the disease. Research has shown, however, that genes don’t tell the whole story, and suggests that environmental factors (which are not yet fully known) play a role as well.
JDRF is currently funding a study that will follow more than 7,000 newborns at increased genetic risk of developing diabetes and will collect vast amounts of data on potential environmental factors over a 15-year period to see which ones are associated with a greater or lesser risk of developing diabetes
health, 80% of Type1’s have no family members with the disease.
allsgr8, as I mentioned in my previous post when I was on lantus I decrease my dose to abt 2/3 this always worked out fine for me. In fact I’m quite surprised no-one has told you to decrease your latus. I was on shots not too long ago, in fact it’s only my second YK with the pump.
Abt the pump, no-one knows about my D either, the pump makes it much easier to keep it a secret w/o compromising on control. I never take it out and always bolus using the easy-bolus feature. Having to hide my pen under my sleeve and run to the bathroom to take a shot was much more obvious than just pressing a few buttons through my clothing. Never mind weddings, and shabbos get-togethers, I hardly ever took along my pens and always ended up ski-high, and if I didn’t make it home on time to take my latus dose… I’m sure you’ve BTDT;)
It’s not advisable to be so high, I try to keep in the 150 range till abt 2 hrs before the end and then I do a correction(if needed). With Lantus I took abt 2/3 of my regular dose and this usually worked out fine.
For the ‘breaking meal’ I increase my basal (stil b4 motzai) and overbolus for everything. If possible I sometimes already bolus a few units 1/2 hr b4 the end to give the insulin a chance to work b4 loading up with carbs. Eating low carb is a great solution, that’s if you can resist the cakes;)
Just curious of past experiences; anyone ever had to eat/drink due to high or low BG?
the worst is the first night, most of the time I end up and high and really thirsty, no fun:( During the day I try to keep my numbers in the 150 range. I take along candies and a meter to shul.
The problem with these sugary nosh are that it’s usually eaten w/o prior planning and #’s shoot up before insulin has a chance to work. I want that ice cream NOW not in a half hour!! Ironically when I plan on indulging by a simcha or such I always end up low since I overestimate and over-bolus in order to avoid getting high.
yank, yes, my doc always check for vitiman D levels. A deficiancy is known to be linked to a lot of auto-immune diseases. However I don’t think it could do much after one has been diagnosed other than prevent other diseases.
It’s also the stigma thats associated with it, it’s tough:(
abt funny story, I work with medical records, a co-worker once send out an email abt a type 1 who had an implant in her foot to monitor her sugar!!
when I started exercising my total daily dose went down 40%! needless to say I needed to do a lot of tweaking. as allgr8 mentioned both my basals and insulin to carb changed. I couldn’t have done it w/o my doc though. You can try (if you haven’t yet) eating a snack before bed but that would be for the mean time only, your doses definitely needs some adjustments.
Love the feeling when lowering my TDD, I have a bit of an obsession with it, I check that screen daily:o
my only suggestion is to reduce your basals even more, abt 3 hrs before you go low, maybe try reducing by .05/hr (thats what i usually do) starting midnight till abt 5. exercise usually doesn’t effect me hrs later, only while I’m working out. let us know how it goes!
At my old place (pediatrics) I could wait 10 months or more for an appointment! and a refill took 2 weeks plus numerous phone calls and mistakes till they got it right.
the current place is rather small so the service is great. My doc is very easy to reach though I don’t call too often…
You certainly did! I didn’t know I was gonna cause such a stir, was just looking for a place to vent at 2 am, I appreciate all your support though. bh #’s are better. I guess calling my doc helped (is that Murphy’s law??) I promise I didn’t do anything different from yesterday!
That bring me to my next question, how often do you visit your endo and how often do you call for advice?
I called and he agreed with me that it’s probably a bad batch of insulin, I ordered new ones, hopefully this will solve the problem…Don’t worry, I do visit him regularly.
cofeefan: absolutely, that’s what I was referring to, it’s a true eyeopener for how much to be thankful for!! I appreciate your advice btw.
I don’t think I’m coming down with anything… I took a correction by syringe, by 6 I was 51… My problem starts once I starts eating, we’ll see what happens today… If it still presists I think I really should call my doc, I hardly ever call him and haven’t been there in a while…
Its amazing how much it takes to make up for one missing hormone!
It’s 2am and I’m 324! that’s after a full correction 2 hrs ago! The past few days have been similar. I’ve changed my infusion set multiple times, opened a new bottle of insulin… I don’t know what to do next:-( Any advice??
Great!
You can count me in too!
No experience either…. wouldn’t it be easier for you (and him) to somehow let him know before you meet again?
You learned it the hard way, and right after you were diagnosed!
I always have a fear when correcting at night, but on the other hand, hate starting my date with an out of range number. I used to rely on my CGM but now I sleep right through it.
Your giving me the chills; that’s really scary. My lowest was in the high 20’s but that was a few yrs ago, don’t remember the exact details. Gotta be careful with stacking insulin….
Washing dishes helps heal these dots;) What bothers me more is the bruises my sensors leave, I can’t seem to get rid of them, anyone know of anything I could try?
cofeefan, try these two sites (took it from FWD) you basically enter the ingredients and number of servings and it gives you the nutrition info.
http://caloriecount.about.com/cc/recipe_analysis.php
I also sometimes use a food scale, comes with preprogramed foods.
Sure do! One example is the diet ice cream, it writes 15 grams per serving and serves 2. How could 4 oz. of diet ice cream (made with splenda) equal to 30 grams of carbs when a 1/2 cup serving of regular ice cream is only 15g??
tralala, Sugar free does not mean carb free, that is what Rabbi Meisels meant.
allsgr8, I get you, it’s my daily battle too. The problem is the guessing, and the more carbs the bigger a chance of making a mistake. and then my #’s are all messed up for the next few days!
(was just trying to say health wise cake/junk is just as unhealthy for non D’s, dealing with the BG after effects is a different story…)
Health, what you learn from ‘textbooks’ greatly differs from real life and real patientes doctors deal with. You can’t compare a medical student with a doctor with expereince in his feild.
allsgr8, You can eat as much of cake and candy as you want just like a person without T1, as long as you cover for it. It’s just as unhealthy for non T1’s to eat junk as it is for you… If your watching your weight that’s a different story:)
allsgr8-I just realized I didn’t answer your message from 4 days ago, it’s weird it showed up today…
I understand your concern with FWD, that’s why I never post there. However I was thinking if/when the girls group becomes in use I’ll create a separate email account for that. and abt YWN, I know a couple of my family members read the CR…
If I have something interesting to share or if I need help I do discuss with my family, other routine things I don’t really discuss with anyone…
Changing lancets, who ever heard of such a thing?? :p jk…
Once in a blue moon, whenever I decide it might be dirty.
My lancet comes with a drum of 5, I’ve been using it for 2 yrs and still using the sample drums it came with.:o
Mod-72- your logic is correct however in reality a boy/girl with a medical condition is likely to have a problem when it come to shidduchim, it’s just the way things are today, we can’t change the world…
a pity… I wonder if we can make use of that FWD-girls yahoo group forum, I’ll do a yahoo groups search, this forum is a bit too public… I never discuss anything D related with my family (occasionally my parents) so this forum is an outlet, sort of;)
allsgr8-I do know 1-2 girls, was referred by a relative who is also T1, although that was only recently. I’ve been secretive abt my D all my yrs. It’s just what my parents choice to do… If there’s any way we can get exchange emails It’d be great.
I also get those type of comments, I’m considered the intelligent one when I know the exact carb count of all foods:)
Health- I’m sure you know this, type 1 has nothing to do with weight. There could be overweight ppl with T1 too…
allsgr8 same situation here… Do you personally know any other girls with T1?
allsgr8- Absolutely! The one I have (minimed) is smaller than most of todays cell phones. I’m sure your doctor has or could get hold of samples for you. You can always call the pump companies, they’ll come down to your house and let you try it.
yos11- MDI was challenging, this is one of the major advantages of switching to the pump. I use the easy-bolus feature, it basically vibrates for a pre-set amount, ex. every 1/2 unit, I don’t even have to take it out when bolusing.
cofeefan- On a regular day does it show through your cloths, say you wear a t-shirt and it’s on your abdomen area? I’ve never used my thigh for shots/infusion sites yet, except for lantus, the absorption is not supposed to be the greatest there…
allgr8-I used the leg thing too, got it from tandjdesign. I eventually stopped using it and now just slip my pump in my tights, works gr8.
Have you ever heard abt Dr. Perkavald, I think he’s located in Flatbush, he has a website too. Maybe you can look into that.
Great suggestion for davening for each other.
BTW, Rabbi Meisels is supposed to have a FWD girls yahoo group. I saw it a while back but there was nothing posted there…
yos11- I was advising you to refer that person to this forum. Was that person recently diagnosed? Does that person know anyone else with T1? It’s always great to ‘talk’ to someone that gets it…
cofeefan-How do you like the omnipod? If you don’t mind me asking, how discreet is it? When you dress up for a wedding etc?
1.3 should be abt 25 mg/dl, that’s quite low, BH you caught it on time. Cofeefan- maybe a cute little wristlet, or just wearing something with pockets??? Winkies you can get away by tucking it in somewhere, but the PDM is more of a challenge.
So were a bunch of 20 yr T1 girls here, how cool is that:) yos11- you can send em here 😉
I dont have to feel guilty about it :)Until that high shows up on the meter…
I think it’s a bec the brain is in a panic mode, all it can think is “I NEED SUGAR” :0
Mosh3: the chance of a Type1 parent having a diabetic child is less than 10%. And yes, everything comes from Hashem, not only sometimes: ALWAYS.
The glucose tabs are not kosher.
tralala, the winkies are about 7 grams per package.
I usually just use any candy, works fine for me, never measure milligrams. Do any of you feel like eating everything in sight when low?
what do you mean by hypoglycemic symptoms?
health, interesting info. I always knew protein could sometimes raise BG, didn’t know how. My doc actually sees is a lot happening with chicken, he calls it the chicken effect…
Would you know why coffee could raise BG, even with a minimun amount of milk?
Dairy I guess has the same answer as protein…
I thinks its 5% if the mother has T1 7% if the father, and if both it’s abt 12%. Not sure I’m correct but it’s definitely in this range. I’m also not sure about the general population, will have to look that up.
tralala, there’s a 50% chance only by identical twins. That means if one twin has T1 the other (identical) has a 50% chance to get it too.
Health, no, I don’t eat or drink when I fast.
Health:I meant boluses, not basal. Why do you go high on a fast day?
Why would one go high on a fast? Looks like you know better than us, what would be your answer??
~it’s just easier to live with it.~
Then why did people die from Type 1 before the invention of inuslin?
~Acc. to you every patient that goes into DKA should die, but we do manage to control the DKA most of the time and then we give the insulin.~
How would you control DKA without insulin??
Like allgr8 mentioned the root of all the complications you listed above is from a lack of insulin!
and to clarify the “pump language” bolus is insulin given when eating or correcting (I don’t bolus when I fast) basal is the background insulin needed even w/o food, and this is REQUIRED when fasting.
Following is a different study analyzing prolonged fasting in general:
Type 1 diabetes and prolonged fasting.
Reiter J, Wexler ID, Shehadeh N, Tzur A, Zangen D.
Division of Paediatric Endocrinology, Department of Paediatrics, Mt Scopus Canpus, Hadassah Hebrew University Medical Centre, Jerusalem, Israel.
Abstract
AIMS: Fasting is common in several religions. The aims of this study were to determine if prolonged fasting (> 25 h) is safe for individuals with Type 1 diabetes and to identify factors associated with success. METHODS: Patients intending to fast were instructed on insulin dose adjustments, frequent glucose monitoring and when to terminate the fast using a standard protocol. Clinical and epidemiological factors were recorded and a comparison was made between successful and unsuccessful fasters. RESULTS: Of 56 subjects who intended to fast, 37 (65%) were successful. Individuals terminated their fast in the presence of either hypoglycaemia or hyperglycaemia and adherence to the protocol was high. There were no serious side-effects of fasting. Successful fasters had greater reductions in insulin dosage and higher HbA(1c). There were no differences between individuals taking intermittent insulin injections and those with continuous infusion pumps. CONCLUSIONS: Persons with Type 1 diabetes can participate safely in prolonged fasts provided they reduce their usual insulin dose significantly and adhere to guidelines regarding glucose monitoring and indications for terminating fasting.
Don’t think we ever asked a shaalah but we did discuss with our doctor. I never had any major issues BH.
I once saw an interesting study where they actually made Type1’s fast an entire day in order to test their basal. I don’t understand how that could be accurate though.
Health, you are technically wrong. The body needs insulin to survive, even w/o eating carbs. That is the basal insulin tralala is referring to.
tralala, she was talking abt Yom Kippur, you can’t eat more than shiurim then. and everybody has their own diyan/doctor to ask if they should or shouldn’t fast on Tisha B’Av, I fasted all the yrs…
I do, on both Yom Kippur and Tisha B’Av. Yom Kippur is much more challenging cause of both the whole shul/davening thing and cause I’m not so comfortable checking real often and playing around with the pump temp basal etc. (chilul yom tov on yom kippur doesn’t feel that great)
On the other hand, Tisha B’av is more relaxing, not obligated to do anything and I can play with the pump/check BG often. In addition, in back of my mind I know I can break the fast at any time…
Your getting me nervous for Tisha B’av though, anyone have any good ideas? Anyone else fasting?
tralala, I’m glad my idea helped, it took a lot of trial and error for me…
Regarding the A1C: mines were seldom above 7, as far as I remember I was always in the 6-7 range(even with MDI and 3x a days shots, before lantus). Since I started the pump/CGM I was BH able to get it down in the upper 5’s -6.0.
And if you drop when going around with 100 I would suggests thats a basal issue. I good doctor is also vital.