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Posted one year ago was a “cleanqueen” or “queenclean” regarding looking for some frum support for a girl with epilepsy to share her “secret” and have others who understand what she is going thru. I would like to locate her to discuss a possible forum with only frum families.
Too many cases of epilepsy have been hidden from spouses ending in divorce. You really need to ask a shaila if you are allowed to with hold such information before getting married!
How could someone withold the fact that they have epilepsy? In the first place, it is certainly nothing to be ashamed of and it should never be kept a secret. Can you imagine if a person had a seizure and nobody around them knew that they had a seizure disorder. They would be rushed to hospital and likely have thousands of dollars of unneccessary testing, when they likely only need an adjustment in their medication, if even that. The person with the seizures should always be wearing a Medic-Alert bracelet. If they were keeping the illness secret, they wouldn’t do this. Are people also ashamed to say they have lupus or any other chronic ailment? Epilepsy is usually a highly controlable disease. I find this entire secrecy issue to be very problematic.
ABSOLUTELY!!
There is a very beneficial diet for Epilepsy called the Ketogenic Diet. For many, two years on the diet provides a lifetime of seizure relief. It was created by the Mayo Clinic in the 1930s but is not used as often as it should, unfortunately.
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