- This topic has 1,924 replies, 78 voices, and was last updated 11 years, 1 month ago by .
-
Posts
-
hey! was just wondering, does anyone have any other problems that go hand in hand with the diabetes? like hypothyroid, or celiac…?
thanks allsgr8:)
I still can’t get over the fact that this whole “D” thing is made into an issue just because of the community we live in! I mean, isn’t it absurd how ppl have to live their lives worrying about other ppl seeing things!
As much as I know there’s really not much for us to do about the way ppl think, and we’re not going to change that any time soon! I can’t help thinking about living life free of the worrying and just being who I really am in the “D” sense. For example, just pulling out ur meter to test and n/o will blink an eyelid like it’s just a reg thing to do!!!!
Does anyone get what i’m saying? anyone else feel this way or am I the only dreamy one around here?!?!?!?
Firstly guys, I want to say how awesome this thread is. I’ve joined non Jewish diabetes forums but never really posted cuz they are miles away from my life. Anyway, bout the telling the boy-
Sorry if I gave off the impression that I have heaps of experience with telling the boy. I don’t, lol. But, what I have been told is that I have to tell on or after the third date. That being said, tw third date is not a magic number. It’s more of a guess of which date things turn from fairly casual to a little more serious. If you feel that you haven’t reached that level at all with a boy then I’m pretty sure most rabbanim agree that you don’t have to say for another date or two. You do, however, have to tell the boy before you reach the level where he is ready to get engaged, because by then his emotions are too heavily envolved an he can’t make a fair and balanced descision.
Bout the secrecy- no, I’m not secretive at all. Of of my friends know, a few of my coworkers that I’m with a lot know, and anyone else that needs to know, knows. I don’t however broadcast it to the world. I don’t pull out my meter and check in front of people. I don’t wear my insulin pump on my waist (even though I think that would be really really convenient!). How bout all of you? Are you secretive? Or did you discuss this before I got here?
Oh and I’m way past the pregnant friend’s stage- I’m already an “aunt”! Some of my friends are on their way to number two, actually. 😉
i am a mother of a 17 year old boy who has diabetes plus 2 autistic children and a few years ago had a brain tumor but i wanna understand and maybe someone can enlighten me why is the world so hung up on people that have diabetes? i mean its just another issue and believe me i know lots of people that have it and they lead very normal lives. i am not in the parsha of shidduchim yet but my gosh why is it such a big deal? its not a debilitating disease and i know a few girls that have quite a few children and all is well so why in heavens name is everyone so scared? i would love to get up and speak to the klal and tell them to keep cool and its not a big deal but then again maybe i think lots of people in this world are not in touch with reality and have rose colored glasses on and think they are perfect!!!
mosh3- i ttly 100% agree with you! in this day and age, especially in shidduchim everyone thinks they are perfect and deserve perfect in return which is why i am so afraid when it comes to telling boys about the diabetes, because in their eyes it is a chisoron when it is 100000000% not!!! people don’t understand it (as i didnt when i was first diagnosed…..)and therefore they don’t know that it is really not a big deal. ( i also think people mix up the two types of diabetes so they might think i brought this onto myself which i most definatly did not….or they could be afraid of passing it down to children which is also very untrue….) i wish we lived in a world where this could be a very “non issue issue.” but society today is scared of the unkown which is why people view it as a negetive. which in turn is why i don’t need every boy knowing about it, even though i am in NO WAY ashamed of it! but in a parsha that already is so into their needs of the “perfect” girl, i don’t want another “imperfecttion” against me… it makes me sick to think of it like that but it’s the way it is!
For those of u who are new here and didnt read all the way back i keep my D secret. Noone knows about it except immediate family. originally this was my parents decision and i didnt agree with them but nowI actually like keeping it a secret believe it or not! not sure why I feel that way but I just do. In the beginning i remember going back to school and wanting to tell all my friends what i just went thru but then those feelings faded and now i like having my own little secret:) I prob will however tell some ppl about it when i get engaged cuz to a certain extent i do wanna some of the ppl im close with to know…. sometimes ppl say funny comments like ur sooo weight conscious-how do u have so much self control, or I have one friend who always tells me about this person she knows who is NEBACH type 1 Diabetic… i just laugh to myself and say just wait till she finds out!!! 🙂
It really is crazy how shidduchim work with D. Cuz I know plenty of stories…ppl who got married both sides officially ‘perfect’ and in one case he nebach was diagnosed a week after sheva brachos with cancer!! There’s no knowing what Hashem has in store for anyone! But, ppl are afraid to put themselves into such a position where they can easily avoid by saying no right away (without even doing homework about what diabetes really is!)
I also got these really funny stories…s/o had bought me a coffe and I was asking her if it was sugar free like I asked her. Another girl standing there said so innocently “I guess u’ll find out” !!!! I was like, sure thing, u bet I will find out once my #s go skyrocketing!:)
um…hello, anybody have other related issues like celiac/hypothyroid…
It’s also the stigma thats associated with it, it’s tough:(
abt funny story, I work with medical records, a co-worker once send out an email abt a type 1 who had an implant in her foot to monitor her sugar!!
Rebbitzen- not related, sorry, no. I know a few girls who have diabetes and celiac or hypothyroidism though. WHy do you ask?
rebbitzen I have been reading with interest about the supplement vitamin d3, how it might help people who are diabetic. Apparently diabetes is one of the things the supplement can help. Most people are deficient in vitamin d. It might be worthwhile to get ones vitamin d tested by their primary care physcian. Have other CR posters read this?
yank, yes, my doc always check for vitiman D levels. A deficiancy is known to be linked to a lot of auto-immune diseases. However I don’t think it could do much after one has been diagnosed other than prevent other diseases.
Rebbitzen- Bh no other issues besides! However, i know someone who has type 2 and hypothyroid. it would make sense that the two can come together since they are both auto immune diseases. I dont know about ciliac though- i dont think its auto-immune.
Yankdownunder- vitamin D may be effective in preventing diabetes but cant reverse it. There are links between a vitamin D deficiency and the onset of Type 1 diabetes.
cuz i have all of em! And my doctor said it makes sense cuz they’re all auto immune disorders…lucky me!
i know my doc has told me that there is a good chance of me having thyroid issues bec of diabetes (as well as the fact that it heavily runs in my family…..)
Rebbitzen- Oy! that must be so hard. How long after the diabetes did you get celiac? Does it make it harder to control your blood sugars?
Come to think of it my doc is forever checking my thyroid numbers…
i got diabetes at 9, hypothyroid at 11, celiac at 13! i dont think it makes a diff on your numbers as long as you bolus appropriately..but its really annoying
Just had the weirdest thing; I test pretty often and this time I wasn’t in the mood of pricking myself again so I just picked a finger and squeezed…hard. and THREE points burst out with blood, pretty cool, no? (If i’d show that to a friend she’d say “ewww”) I used to be so grossed out by seeing blood I think seeing it so often has made it just a normal thing to us;)
People who are diabetic that use sugar to sweeten their coffee, try Stevia (natural alternative to sugar)as a substitute. You only need a pinch to sweeten the cup.
simcha- i have that all the time i love it because it saves me from pricking myself again…. lol
reb- i feel so bad for u! must be a real challenge!!!!
yea i know what you mean cause 2 nitghtes ago my son was great and then last night like at 4am he was so low that i almost had to call hatzalah but i his dr lives 3 blocks away so i called him, he came over and told my son to eat a few winkies and in a few minutes boruch hashem his numbers went up but i dont get why that happens so his dr said it could be from stress or maybe something he ate during the day, GO FIGURE!!!
I still don’t get how u ppl keep away from nosh, cakes and stuff like that. Me ‘n chocolate are just best buds;)
How’s it possible??? Any tips?
Mod- if you are only on pills it could be from food you eat. If you eat a high carb meal you could he peaking then dropping. Try reducing carbs at supper and see if that helps.
simchallthetime- when u find a solution let me know! 🙂
In the beginning I was so good about it I barely ever ate cake or cookies besides for shabbos and even then it was just a little but now….i dunno I cant seem to stay away from them for too long! yikes
simcha- i definately dont!! chocolate is my best friend and pasta is basically my sister….. you just have to know how to bolus for it!! (and of course all in moderation……)
The problem with these sugary nosh are that it’s usually eaten w/o prior planning and #’s shoot up before insulin has a chance to work. I want that ice cream NOW not in a half hour!! Ironically when I plan on indulging by a simcha or such I always end up low since I overestimate and over-bolus in order to avoid getting high.
Forever1- Yup! ur definitely right about overestimating..it always happens when I go out to eat or on yom tov when i plan on eating 2 desserts and then only have room for half on one! lol
Wedding’s are really crazy, I don’t know how much to bolus for the meal ‘cuz there’s no knowing how active I’ll b for the dancing…
Ye thats why i just skip the carbs as best as i can! when i get home i just correct for the high. I think its pretty safe that way. Also, they type of dancing that we do at weddings isnt that active and prob doesnt really affect the numbers much.
has anyone here ever donated blood? i really want to donate but i heard that they don’t always accept from diabetics…. i emailed my doc and she said as far as she’s concerned there is no medical reason for me not to if they allow it… any opinions?
I have donated blood plenty of times! I give through Chai Lifeline, where it goes directly to a frum patient in Memorial Sloan Kettering! They told me in the donor room that it’s not a problem at all, never had an issue with it! Go for it:)
coffeefan-thanks,..it is..not that i wish it on anyone but i was kinda hoping that someone else would have it too…ya know misery loves company! :/
Rebbitzen- ye i know what u mean..that’s basically how this forum makes me feel!
Cofeefan- Thanks for bringing up that question cuz i always wanted to donate blood but never dreamed that i’d be allowed to…! I thought it would totally be outa the question. Mayb now ill do it 🙂
So everyone, what’s the story with Yom Kippur? Any tips? i always get so nervous before the fast…
o gosh! i dread yom kippur from motzai yom kippur! i’m always so sick! its so hard to stay perfect…if i’m dropping, i feel aweful and i never know at exactly what number you’re supposed to break it at..and if i’m in the 200’s+, i’m dead thirsty! uchhhhhhhhhhhh!
yea rabbi meisels is the best with ideas and tips on how toget thru yom kippur but i always take winkies and cookies along to my father’s yeshiva where i daven just in case something happens. i also let one of my father’s friend know (someone who is a hatzalah guy) so if he sees me acting nuts or something is going on with me he can help!!! i also take along extra insulin and needles and hope for the best.
the worst is the first night, most of the time I end up and high and really thirsty, no fun:( During the day I try to keep my numbers in the 150 range. I take along candies and a meter to shul.
We have difficulties with our tenage son on yom tov, trying to figure out how to bolus for those every so often yom tov treats such as Tzimis, stuffed cabbage, a roast likavod yom tov cooked up in a sauce that probably has 90 carbs for every 8 ounces of sauce etc…
Rabbi Meisels of FWD has been a trmendous resource for over 10 years, and despite his advice and encourangement my son has blood sugars over 300 a few hours after the seudah almost every time.
My son has also been to several shabbatonim Rabbi Meisels has made for boys and has come back with soooo much chizuk after each one. He is a malach (his Rebbetzin too).
“He is a malach (his Rebbetzin too).”
This was a reference to Rabbi Meisels and his Rebbetzin. (Of course my son is a malach too, as I’m sure his Rebbetzin will be Bezras Hashem).
Strange..everyone here seems to feel thirsty when theyre high..I barely have any symtoms when im high. I feel a bit like im walking on clouds-my head is like airy..i dunno i cant explain it but i dont feel tired, sick or thirsty.
When im low i cld barely keep my balance or think clearly.
i’m really nervous for yom kippour for the same reasons… i always start off SOOO thirsty and nauseous but as the day goes on i end up fine and drifting a bit low (but because it’s “shorter” (in that the actual day is shorter and its over by 7ish) than Tisha baav it’s easier in a way. what i’m nervous abt is my Pump. bec it’s wireless (i have the omnipod..) i don’t know whether i shoukld take it to shul or leave it home cuz i cant carry it and prob will need it in both places…idk what to do!
allsgr8- lucky you… i get sooooo thirsty when it goes even a bit over 200 as well as really cranky and moody (everyone in my house knows…. she’s cranky must be high….) but worse is lows because (as you all prob know all too well…) i get so shaky, sweaty, dizzy and starving even after i just ate it’s horrible!!! thats why i try so hard to stay in control if nothing else than not to feel gross..
Re: Omnipod. Rabbi Meisels has probably researched the halacha and probably already has the answer. Give him a call.
is there an email adress where i could reach rabbi meisels? (i don’t want to call i’d much rather email…)
yea its this and you can email him but if you need an immediate answer its better to call him directly http://www.friendswithdiabetes.org
we’re officially on page 10! WHOAA!
Might b too late but…
u can e-mail Rabbi Meisels directly at: [email protected]
- You must be logged in to reply to this topic.