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cofeefan- On a regular day does it show through your cloths, say you wear a t-shirt and it’s on your abdomen area? I’ve never used my thigh for shots/infusion sites yet, except for lantus, the absorption is not supposed to be the greatest there…
allgr8-I used the leg thing too, got it from tandjdesign. I eventually stopped using it and now just slip my pump in my tights, works gr8.
Have you ever heard abt Dr. Perkavald, I think he’s located in Flatbush, he has a website too. Maybe you can look into that.
Great suggestion for davening for each other.
BTW, Rabbi Meisels is supposed to have a FWD girls yahoo group. I saw it a while back but there was nothing posted there…
I have a good question to ask – when you are invited to someones house for a shabbos meal and would prefer to keep the diabetes quiet how do you handle the meal. It is nearly impossible to know how to cover since the foods such as roasted chicken or salad could have barbecue sauce with tons or sugar or dressing with tons of sugar. It is so hard when you want to be sociable and accept someones invitation.
Everybody -please use spell check!
Yos11- well sounds like your a boy so maybe you get invited out more than us girls do. When once in a blue i do get invited i just eat and estimate how much to shoot when i get home. Im ususally on target but if not i just correct! 🙂
are you on the pump? cuz then you could just go to the bathroom or something and bolus there..
Forever1- is the pump really that discreet? you could hide it in your clothing or tights like you said and noone will see it?
allsgr8- i wish there was a way we could really get the names for us to daven for but i guess we’ll have to do with the usernames for now!
forever1- sometimes it does show i have learned over time which spots r better and what to wear when it is in the badf spots. i didn’t use my thigh a lot either so i was worried to put the “pod” there but it was really ok.. my BSLs were really good i though it would be a problem too but BH ut worked out great and it didn’t hurt as much as i thought it would. the biggest problem i have when it is there is that is bothers me when i sleep sometimes but again it is a matter of getting used to it. anything new has it’s pros and cons.
yoss11- i had that problem when i went on school shabbos with my school.. it’s a matter of trial and error you estimate how many carbs you think it would be and give insulin according to that.. if BSLs r a little high you know why and you correct it later on. my philosophy is that it’s better to be too high and correct than to be too low. it might not work for everyone but it’s what works for me! my problem is always carrying my things with me if there was no eruv but BH it always seemed to work out!
i made it through the date! wasn’t a good one, and my score was low before, and i got all nervous, and switched my basals, and then was high..a bit of a mess, but i guess good practice
allsgr8- Absolutely! The one I have (minimed) is smaller than most of todays cell phones. I’m sure your doctor has or could get hold of samples for you. You can always call the pump companies, they’ll come down to your house and let you try it.
yos11- MDI was challenging, this is one of the major advantages of switching to the pump. I use the easy-bolus feature, it basically vibrates for a pre-set amount, ex. every 1/2 unit, I don’t even have to take it out when bolusing.
about the pump being discreet, i’m on the combo, and if i want it really discreet, I put it under my arm
rebbetzen- Sorry that the date didnt work out.but you have the right attitude! It was good practice! May the right one come along real soon!!!
amen! thanks! so getting back to the diabetes shabbaton, did anyone go?
nice to hear from you!
rebetzin- i’m sorry about the date but you are one step closer…. next time why not eat a few winkies before rather than switch the basals? that way it brings it up without making it too high?….i never went to any shabbatons though Rabbi Meisels has been trying to get me to go…. it’s not my thing…
Mod 72- You sound like you have type2. I have type 1 so i wouldnt know much about the meds..i think a lot of others here are the same. sorry
rebbetzen- No. I didnt go to the shabbaton cuz like i mentioned b4 noone really know about my diabetes so my parents didnt want me to go to the shabbaton. Rabbi Meisels tried convincing my parents but eventually gave up.lol
allsgr8 same situation here… Do you personally know any other girls with T1?
Forever1- nope! Do you?
when my diabetes was diagnosed at age 3, it was kept a big secret, it was very hard for me, especially as a teenager, but when I was in camp(as a9th grader), i couldn’t stand it anymore.It was so hard hiding everything a few times a day, checking, taking insulin, etc.(there were no pumps yet in those days…)so I asked my parents permission to tel it to my friends, it took time but in the end they let me, and even made phone calls to jda(today fwd)to ask for others my age.
why am I telling you all this? because you can’t imagine how I felt after putting down the phone with my new friend! I spoke to her for an hour(!), it felt so good to feel that someone really understands me and knows what I’m going through. Before I didn’t even know what I was missing!
You don’t have to tell it to all your friends, but to come to a fwd meeting won’t harm you;I once even came from Europe to it, it pays!( and those who are there, understand your secret , so they won’t tell it to anybody!
tralala- I have to say that in your case your 100% right! having to live almost your entire life keeping a secret is very hard (especially for someone so young). but I was diagnosed at 18 when I was fairly an adult already. At first I did want to tell all my friends about it but then my parents explained the situation to me and I agreed with them that it was better to keep it a secret. I have to say that sometimes its fun when people say comments like “Your so skinny why do you always watch what you eat>” or ” You have SO MUCH self control.” well, duh? I just laugh inside and repeat the stories to my family and we all laugh together!
at the same time though, i would love to have a friend who I can talk to about it sometimes..oh well! I guess that’s why we have this forum!! 🙂
wow! i really feel bad for anyone who has to or even chooses to keep it a secret! its like, for what reason>?:!
That’s what great about being a type 1 instead of type 2. The type ones are usually skinny.
health- I was thin before the diabetes. I didnt get skinny from it..but i guess someone who was overweight would probably lose weight.
Rebbitzen- I dont keep it a secret cuz i think its a bad thing or because im embarrased…If you refer to my previous posts you’ll understand why I keep it quiet.. I cant write it again 🙂
allsgr8-I do know 1-2 girls, was referred by a relative who is also T1, although that was only recently. I’ve been secretive abt my D all my yrs. It’s just what my parents choice to do… If there’s any way we can get exchange emails It’d be great.
I also get those type of comments, I’m considered the intelligent one when I know the exact carb count of all foods:)
Health- I’m sure you know this, type 1 has nothing to do with weight. There could be overweight ppl with T1 too…
forever1- I dont think there’s a way for us to get eachothers emails…
Btw this forum is really the first time I have ever discussed my D with anyone outside of my immediate family andI have to say that it feels really good. (its funny cuz in my house we call it “D” but i didnt know everyone else did too 🙂 lol
a pity… I wonder if we can make use of that FWD-girls yahoo group forum, I’ll do a yahoo groups search, this forum is a bit too public… I never discuss anything D related with my family (occasionally my parents) so this forum is an outlet, sort of;)
Allsgr8 -Most people have type 1 from a young age -therefore it helps them stay skinny.
Forever1 -That’s why I said “usually”!
forever1-the reason i dont like using the FWD group is because i think my email comes up every time..im not so comfy with that. .btw If noone knows you here whats the matter with it being public? Do you mind if I ask why you dont discuss it with your fam and parents only occasionally? Who else do you discuss it with if not for them? The truth is that its not really like I tell anyone what i feel but if I have questions or something funny happens at least they can understand..
I’d like to take a poll here: How often do you change your lancet? or when was the last time you changed it??
I used to change it every time i checked by BGL but now I change mine like 3 times a week! Yikes! im so lazy
Mod -72- why would you delete it? It’s much healthier to be skinny
well, I’m one of those type1’s and not at all skinny, I even had to have a gastric by-pass last year!
Now I have a (almost) normal weight, but before it was very funny to hear people’s comments like: if you don’t eat sugar, how come you’re not skinny?I would just laugh at them, no patient to answer such a stupid question…
Changing lancets, who ever heard of such a thing?? :p jk…
Once in a blue moon, whenever I decide it might be dirty.
My lancet comes with a drum of 5, I’ve been using it for 2 yrs and still using the sample drums it came with.:o
Mod-72- your logic is correct however in reality a boy/girl with a medical condition is likely to have a problem when it come to shidduchim, it’s just the way things are today, we can’t change the world…
i never change my lancet! its probably not good, but i just dont! and its so funny to hear how other ppl talk about their diabetes. we’re so open about it here. e/o knows if ______ is low, get me something fast! we dont call it “D”. We say the full word! gasp! it makes it so much easier to deal with it. its actually kinda cool to have it and to explain it to my friends. I’m just so happy to hear how open and comfortable my fam and friends are. It would be impossible if we just tiptoed around the situation my whole life!
rebbitzen , i fully agree with you!you’re 100%right!but my family’s decision came to late and I still have the guilty feeling that I grew up with.(in a child’s mind: if I have to hide something, it’s her fault , no?)
wow! nebach!
rebbetzin- we dont walk on egg shells about it in my house but the truth is the D thing came about cuz in the beginning I couldnt get the word out of my mouth..It was hard to consider myself a DIABETIC! wtvr..to each their own.
about the lancet thing..I see im the best so far! whoohoo!!!
Rabbi Meisels once put up a really cute line when it was time to change the clock. He said: Everyone its time to change the clock now that means its time to change your lancet too!! that was when i realized i wasnt nuts for not changing it…lol
BTW to all of us in shidduchim, dont forget, today is Tu Ba’av! A day thats a mesugal for shidduchim. Let’s not forget to daven for eachother!
i think it might change your attitude to not call yourself a diabetic, rather someone who has diabetes. it might make it easier. diabetes does not define you.
Rebbitzen- That’s like saying that someone who practices medicine is not a doctor, he’s just someone who practices medicine!! wether i consider myself someone with diabetes or a diabetic it is essentially the exact same thing. I absolutely do not think of myself any less because of the D I actually have to say that I bh have a wonderful attitude about it and about life in genereal and sometimes I even consider myself luckier than others because of the D 🙂 Listen, I understand why you feel like making it public but I still dont think that that is the right way for ME PERSONALY to go about it! you dont have to agree with me but at least try to understand me and others who feel the same way! 🙂
Allsgr8 -Not everyone who practices medicine is a doctor. EMT’s, NP’s, PA’s, certified midwives, nurse anesthesists, all practice medicine and aren’t doctors. But I get your point.
personally i don’y change my lancet too often even though i know i should i just keep putting it off saying “i’ll do it next time…” but then i don’t.
i have type one and i am not skinny (i’m not obese either….) it always makes me feel bad when people tell me i shoul lose weight because of my diabetes when i am in PERFECT control despite my weight. it also bothers me how people don’t understand the difference between the types. i’ve gotten comments like “well your diabetes would go away if you dropped a couple of pounds…” it really hurts when people make such comments so maybe people here should try to be more sensitive because this is supposed to be a place where we can be ourselves about our “cpndition” and not be told what is and isn’t “right”
as far as telling people in general… i was in 6th grade when i was diagnosned and theni only told my friends and was very secretive about it but i got tired of that so when i went into high school i was open about it (also because i got a pump the summer before high school and i wore it on my skirt and i got tired of people telling me to put my cell phone away so i just told them the truth…)
allsgr8-I just realized I didn’t answer your message from 4 days ago, it’s weird it showed up today…
I understand your concern with FWD, that’s why I never post there. However I was thinking if/when the girls group becomes in use I’ll create a separate email account for that. and abt YWN, I know a couple of my family members read the CR…
If I have something interesting to share or if I need help I do discuss with my family, other routine things I don’t really discuss with anyone…
forever1- ahhhh i get it!
If you don’t change your needle even after one time, you are chancing getting an infection. The point touches the skin when it’s pierced and can pick up germs. These will remain on the lancet. These can now infect your dermis, subcu level or even get into your blood. A diabetic with an infection isn’t a pretty picture. Also, people with medical conditions (like diabetes) should even be more concerened than others, that they are within their ideal weight range.
health… do you have diabetes?
whats the thing with diabetics and feet? e/o is always concerned about feet for some reason…does anyone know anything
Cofeefan- I answered that one at the top of page 4.
Rebbitzen – It’s funny you asked that question right after my post about needles. I know -it’s part of medicine that I learned. But, I’ll give everyone else a chance to post first.
It has something to do with the nerve endings getting degenerated..too much glucose in the blood over long periods of time can cause it along with kidney problems..if you have good AIC’s and control your blood sugars you will be healthy iyh until 120!!
Allsgr8 -So what’s the problem if the nerve endings are degenerated? Finish the explanation.
health- being that you are not a diabeteic, please stop telling us what to do! i know you probably mean well and i might be over sensitive about it and reading it the wrong way but your comments seem a bit harsh.. i have had diabetes since i was 11 years old (over 9 years..) and have always been 20 pounds over my “ideal weight range” as you put it, and have been in COMPLETE and TOTAL control the entire time. so unless you have diabetes yourself or are a specialist i would appreciate if you didn’t make generalizations regarding weight. again i am probably over reacting and i am SURE you only mean well. yes i do know i should weigh less but it is very hard for me to lose weight with my diabetes. i eat right, do not eat junk food and exercise but there are a lot of other factors as well and i have discussed it with my doctor. i understand your points but you can’t ever fully understand unless you are in the shoes (and i hope you or anyone else never is…) thank you and i’m sorry again if i over reacted!!
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