- This topic has 1,924 replies, 78 voices, and was last updated 11 years, 2 months ago by .
-
Posts
-
princess- yes it is harder for Diabeteics to lose weight! besides for the lows that come with eating less, insulin gives us a run for our money!! thats not to say its impossible bec its not! just takes a LOT of determination and patience!!!! (not something i have…..) sometimes i feel like i will stop giving insulin, lose weight (one of the symptoms of high b.s) and then after i lose the weight i will get back in control but i know thats not safe at all so i will just stay fat and ugly oh well
alls- no i dont miss anything from the other pumps. the omnipod has all the feattures my old pump did. i am happy with it but i dont know what the new pumps have so i cant tell you what this is missing! sorry!
Thanks cofeefan for the ‘look’ about the mountains, this reminds me of the book ‘mountain-climbers’, i think one of us can write there too…
Btw, someone asked me to write about my D in the ami, should I ?
allsgr8, ans princess, you’re both so right!
Rebbitzen? Not saying anything… keeping it just for you!!! (Not bad, hey! At this rate we’ll finish pages in weeks!!)
Cofeefan – what do you mean “insulin gives us a run for our money!!” Why do we gain weight from it?? Beside the eating when going low.. IT’S NOT FAIR!!! I’m so exciting to hear that somebody is even considering to skip the insulin to lose weight, nobody seems to understand!! But beside the thrill – IT WORKS!! Ok, ok, it’s only temporary because as soon as you take even a little bit of insulin the weight comes back on.. Tell me, have you ever tried it before????
Tralala – what’s the question!! OF COURSE you should write if you’re being offered! I’ll help you if you want 🙂 🙂 Post a copy! In the latest book of mountain climbers there is actually a story from somebody with D, did you read it?
It’s Sunday … That means tomorrow is MONDAY 4TH … That means i go to have my A1C tested … and if there isn’t any improvement she’s gonna take away my pump.
(This threat given 4 weeks ago was what made me take insulin regardless of the weight gain. I kept saying that as soon as this appoint is ova i’m gonna lose it again in this way… BUT I MUST’NT!!!!! HELP!!!!!!)
tralala- thats so funny that you mentioned that book bec i just baught Mountain climbers today after posting abt it and i cant put it down! i really think we could write a story for it. im really considering it…. of course you should write for ami!!! i would LOVE to read it!!!
princess- i read somewhere a while ago abt this diabetic girl who stopped taking insulin to lose weight and now she has serious issues. they conisder it an eating disorder. its not worth it! and trust me i know how you feel! i HATE my body and the way i look! i HATE HATE that no matter how little i eat the inches and pound dont come off! i HATE HATE HATE all the comments that are made sometimes by people who dont understand (and even by some people who you are close to and mean well but dont knwo how tough it is….) ive been there. its painful i know! but “starving yourself from insulin” wont help it will just make us sick and please dont do that bec we need you here on this thread! dont give up hope! i am crying just writing this bec i really know how you are feeling and it hurts me that there are no answers to give!! weight is a very very very sore subject for me! i have always struggled but lately its gotten worsebec of the fact that i found out a few things that someone said (having to do with shidduchim….) i cant tell you how manty nights i have cried myself to sleep and the pain it has caused. i was ready to give up and not eat but then i remembered the DAIBETES WONT LET ME NOT EAT!!! ITS NOT FAIR!!!! there are no answers princess we just have to rely on eachother for support i guess! so i am here… i understamd!! VENT AWAY!!!!!
welcome to page 25!!!!!!!!
i know that our hunger we have to satiate
and to regret it after because of the weight
a good thing that here we can vent away
and our true feelings we can openly say
for us that we deal with all this mayhem
all cause by the isles of langerhan
please do not give up any of you
because without you what would i do
look at Avraham who pasted 10 tests
and that’s what made him really the BEST!
ok my post office is ready to send out “mail” to you all.
princess- i really try not to have bgs higher than 200 (which of course is impossible) my monthly average of insulin intake is about 49 units a day (including basal). i eat an average of about 250 carbs a day.
sweet- thanks about the cornflakes, and about the link about the glycemic index. i see that you take novolog. is there a big difference to humolog. i use humolog.
cofee- i am happy that you are also starting to wait after bolusing. i was wondering, lets say like a wedding when you don’t know what they are going to serve, should i wait till my food gets cold before i eat it so that the insulin gets a head start? lol
tralala- thank you for the welcome. wow that is a lot of years. keep on davening don’t give up. we are all in it together.
reb. thanks for welcoming (i think its called) the silver page
a question for all of you: i seem to be getting headaches, could it be from all the fake sweetners that are in the diet stuff?
good news:
a research group called me to try out new infusion sets. they will not actually use it on you, just to simulate an infusion. if any of you are interested please call
melissa goldstien at 212-505-6805
its for a company called medex. it will be done in manhattan. they will pay if you partake. they are mainly interested in people under the age of 21. i do know that they are also using people who are over 21.
i will be there with my two kids on this coming sunday from about 2:30 to 3;45. its only i think for this friday and sunday. if any of you are interested just give her call. thanks. i hope i was clear enough.
i have been doing the waiting for a while but now i started 20 min and the extra 5 min makes a huge diff…… as far as weddings… i dont usually eat at weddings (or really anywhere in public… just my own “mishagas”) so i dont have that prob….
interesting about the headaches coming from the fake sweetners. i dont really have that prob but i could see why you would think that. ive heard that the sweetners can cause side effects…
cofee- i did hear somebody tell me that its the carbon dioxide in the soda that does cause headaches. i am not so convinced about it
Coffee, have you ever heard abt simlyn? Is supposed to be another hormone type 1 are missing, it slows digestion, and signal the brain when the person is full. it’s only approved for adults so far. It supposed to help loose weight…. Dunno if ur doc has the experience since she’s pedi…..
dx3- I have heard of people getting headaches from artificial sweeteners…dont know much about it though.
princess- Yes you are correct that insulin is not really what makes you gain weight its the foods that are supposed to cause a rise in insulin that can potentialy cause weight gain. However, think about energy balance. In order to lose weight you have to use more energy that you are taking im- negative energy balance. This is the trick! Not taking insulin is only going to cause problems along with the weight loss and is TOTALLY NOT WORTH IT! I never even entertained that thought and PLEASE dont either its really a detrimental approach. I beg you not to!
I think im changing my motto to:
WE CAN DO IT! WE CAN DO IT! How does that sound since we’re all in this together ?
Hi everyone,
My 13 year-old daughter was recently diagnosed with Type 1 diabetes. She is doing very well, and we would like to send her to the same overnight camp that she has gone to for many years. The camp has no issue with it, and will support her.
My daughter, however, is concerned about some practical issues – for example, “Where will I put my monitor when I go swimming so that it doesn’t get lost or broken?”
Does anyone have a girl of the same age range who has handled these practical issues and would be willing to make contact with my daughter? She really just needs reassurance that she will be able to handle it and possibly brainstorming assistance in coming up with some solutions.
Thanks
csilver- welcome to this forum. we are glad to have you
i have a six year old daughter who has D, and because of it we are keeping her home.
i myself went to camp but was on shots.
your daughter can go swimming without the pump attached. if you are scared about it getting lost she can give it to her councelor.
csilver- welcome! Sorry I dont have any advice for you as I was diagnosed at a later age (18. You should probably call the camp nurse and ask her if there are any other campers with type 1. There probably are… Just wanted to wish you Hatzlacha!! 🙂
Thanks dx3 & allsgr8!
I’m actually not so worried – but she is. And she’s B”H not worried about taking care of herself – she’s very responsible and really understands what’s going on. She just really wants someone to “hold her hand” through the little issues that doctors & diabetes educators don’t mention.
I’ll call the nurse and find out – that’s a good idea.
Dex- Humalog and Novolog in general are 100% identical but some do say that btwn novolog and humolg, Novolog appears to be both stronger and quicker.
Regarding prebolusing by weds I usually bolus like 3 units prior heading to the smorgasbord take into account that most goodies are 30carbs at least if not more . Than after eating my portion I bolus for the missing carbs.
Diabetes is an Art, NOT a Science. You must master the control by skills and not by knowledge alone.
Mods? How can I give her this address?
CSilver – Welcome! Much Hatzlocha for your daughter! i haven’t really any answers for you, perhaps you can get in touch with Rabbi Meisals about speaking to other people, camp etc (you must have already been in touch with him?)
Talking of writing books – that’s my dream. But first i have to live long enough to get my A1C down.
It isn’t easy to write tonight. It’s been a tough evening. Cofeefan – i read your post and i (too?) cried.. And i prayed for both – all – of us!!! And yes, cofeefan, i feel what you’re saying so strongly, too strongly..
Dx3, cute poem! i esp like the first 2 lines.. And yes, i like poems!!
They gave me ANOTHER chance to get my A1C down. 6 weeks. It hadn’t gone down since last time. Somehow 6 weeks feels like forever and i just can’t seem to feel the ability to do this. 460 .. i’m paying for feeling like this!!
Yes Allsgr8, that’s a better motto! Just keep saying it like a hundred times a day. i don’t know if i care if it’s worth it or not to skip the insulin, at least i’ll lose the weight! It’s so much easier because it’s almost a denial to the D and so you don’t have to try. But why am i talking like this??? I mustn’t do this, i mustn’t think this, i must, must, must get that A1C down and my bg’s in control!!!!! HELP!!!!!
princess- i am happy to hear that they are giving you another chance. is it possible not to eat carbs after supper and if you are high by bed give yourself a correction and hopefully your numbers will be good throughout the night bringing down your a1c. if you are constantly high by bed maybe go up on your carb ratio. if you still wake up high maybe you need a higher basal throughout the night. don’t be afrad to make the changes in the pump youself. i have been diong this for all three of us since way back.
when you write your book dedicate it to all of those who know you as “princesseagle”.
don’t give up we are davening for you. we want you to stay pumped in the pump club.
silver- i have heard of a person with D who had a buddy with her all the time in camp and when anything that was related to D she was there to help. does your daughter know anybody else who is going to this camp?
i myself was a councelor of a D, but of an older age. you can call r. meisels to put you in contact with someone else.
medtronic just called me and told me that i can get a new pump!!!!
i am hopefully going to get it with a cgm. I AM SO EXCITED!! 🙂
princess- i asked the rep from medtronic about taking away the pump and he told me the insurance or pump company are not allowed to take away a pump. it must be coming from the dr. iguess to motivate you. hopefully you will get back back on track. don’t give up!!! 🙂
Thanks for your welcome, everyone!
I have been in touch with Rabbi Meisels & intend to put this question on the FWD group bulletin board. Given the restrictions on sharing email addresses in the CR, it is probably a better source of contacts.
I have been lurking for a few weeks on this thread, and find it very supportive – I’ll probably do more lurking than posting, but I appreciate the support I get, anyway.
hey peeps,
question: what do you do when you do a vigourous excersice? its annoying, cuz i put off my pump and i still go low! and then i just have to drink a sugar drink and gain all the weight back! 🙁
yeah, reb, it’s hard to figure out these things.Maybe try putting your pump off a hr earlier?
Silver, I was also in camp(15 years ago…) and i could help you. you can find me on imamother.
dx3, thanks for letting us know that the dr isn’t allowed to take it away, mine also said she would…
Sweettooth, I like what you wrote about the art and science.
Tralala -“dx3, thanks for letting us know that the dr isn’t allowed to take it away, mine also said she would…”
No, that’s not what he said. The doc will take it away. This isn’t a punishment, but it’s his/hers job to help you manage Diabetes. If you can’t lower your A1c’s, that’s telling the doc -on the avg. you have high BG’s. If the doc has to put you on Insulin via subq in order to try to control the BG’s, then that’s exactly what he/she will do!
It’s not his job to take away something that he has no ownership to. Does he have a right to take away syringes from someone who has poor control???? I have a feeling that were dealing with outside us where the government pays for ithe pump so thy do have ownership, they’d rather give it to someone who is willing to oblige with control….
Reb, you tried starting out a bit higher? Eat a snack right before you start?
forever 1 – Well look at it this way -You are giving it up willingly. If you don’t want to give it up, then he/she can say -Go find someone else to be your doctor!
health, i really wouldn’t like to be your patient 😉
tralala – Actually the difference between me and some others is that I believe in “tough love”. It’s not that difficult to be nice to every patient and let them do what they want. But, are you really helping them? Are you helping them live longer – more healthy lives? Or are you just winning the popularity contest and making lots and lots of money, even though your patients are misreable and have tons of complications/hospitalizations?
You decide which is the right way. I would say a good portion if not most, are the latter.
health- you know what i feel about tough love… i dont believe in it! it works for some people but for some ( a lot….) it doesnt it only discourages them! so dont think its 100% fool proof!
guess what people? i broke my foot!!! yay! should i be nervous that the pain meds will afeect my blood sugars?
OMG cofeefan! How are you feeling? How in the world did you do that??!! The meds might affect your BG I guess it’ll b trial and error all over again! Ask your doc though… Oy I really feel bad for you REFUAH SHELEIMAH!!!
Tralala,
Is that your name on imamother?
cofee- hope you feel good soon. i know that flavored meds do raise blood sugar, but with my expirience i don’t think that it will effect it that much. what will effect it is the fact that you are not going to do much moving around. so you might need to raise your basal a bit.
health- i would think that poor control of a patient also reflects the dr. who is managing the patient. if the person with D is logging their numbers shouldn’t the dr. be able to make the appropriate changes to get better control!!!!!
so all of you should be on top of the dr. to keep on making the correct changes.
CF – Well you have to look at it from my point of view -First of all if you want everything to be sugar-coated, then go to one of the doctors that do this. Second of all, what do I have to lose besides the patient going elsewhere -they were discouraged before I met them and they are still discouraged. No gain or loss. By being tough, sometimes you can turn people around. Acc. to the Torah, you’re allowed to hit a kid (Some people hold not in our generation.)? Why, why not just tell them off? Because sometimes to make a point come across, you have to take desperate measures to accomplish this. I remember some of the Petch I received as a child.
Why do people seek help from medical professionals? Do they want them to pity them, like their peers and family or do they want them to maintain and keep their health? If you told the patient to do something and they aren’t listening, I believe you should try a different appproach -sometimes this might include having “tough love”! Or you can take the easy way out and just patronize the patient and say “I’m glad your trying -keep it up”. This practioner only cares about themselves and not the patient because they are doing nothing to prevent complications.
Young people with diabetes know nothing of the complications of diabetes, but I do -I’ve seen it. They lie around the corner waiting to spring. The hospitals & nursing homes are full of patients with diabetic complications. Ok, granted some are newly diagnosed, but what about the others? The answer is because their practioners didn’t put in enough effort. They took the easy out -“It’s ok, you’ll try harder next time”. Next time came and they said the same thing. This happens until the patient comes down with complications. Now it’s too late to prevent them, only to treat them. “A ounce of prevention is worth a pound of cure.”
The way a lot of these complications are treated isn’t a pretty sight! I won’t go into details here.
if you have a dr. or diabetes educator who is good and also available and reachable, (as long as you test and actually bolus) you should be able to stay above water. he/she will make changes to your numbers as soon as they go haywire.
We used to have someone who was excellent, we called her our “angel”… hope we’ll find someone again soon and hopefully the rest of you too.
health- why is it that every time i see that you have posted i know i am gonna end up upset? i should learn my lesson and STOP reading them! youre entitled to ur opinion BUT i dont have to agree. and please dont make a big deal arguing your point i hear what your saying and i respect your opinion but like i said i donnt agree and i dont wanna fight! 😉
as far as my foot- it hurts =( dont ask how i broke it!!! BH its only in a boot not a cast and i have to stay off of it…(YEAH RIGHT!! NOT HAPPENING!!!) thanks for your well wishes allsgr8!
dx3- i didnt even think of basals!!! thanks so much for pointing that out!! i am so upset bec i finally got into a better exercise routine and started to see weight come off but now i cant do it for a while!!!! oh well GAM ZU LTOVA!!!!! everything happens for a reason right?!?
Cofeefan, a refuah sheleima!
I also had a broken foot years ago, I don’t remember medication affecting the bg, besides if you’re talking about sweet tylenol…
silver, I answered you on imamother
forever 1, i dont wanna eat a snack before because thats what i’m trying to lose! i feel like if i make myself high by eating, then i’m defeating the purpose of excersising!
CF – ” why is it that every time i see that you have posted i know i am gonna end up upset? i should learn my lesson and STOP reading them! youre entitled to ur opinion BUT i dont have to agree. and please dont make a big deal arguing your point i hear what your saying and i respect your opinion but like i said i donnt agree and i dont wanna fight!”
I’m not here to get you or anyone upset. I’m here to help you with your illness. Sometimes I think young people feel -won’t this just go away and I won’t have to deal with this anymore. It’s possible that they will develop a cure or close to it, but in the meantime you have to learn to deal with what Hashem gave you. It will take hard work throughout your lifetime to keep complications at bay. But you can do it, even if it has to be constant. I think you feel if I’m not there yet, I failed. This is so far from the truth – eg. you just started exercising better. You are well on your way to getting this disease under control. The only one putting you down is yourself because you live in the NOW generation. If you don’t have it or get it now, you will never get it. Your self-criticism -you are deflecting on me. I still stand by my statement of sometimes people need “tough love”. I don’t think you are one of the ones that need it, but sometimes people need different motivations. You are very self-critical and that’s why you think I was talking about you. Nobody has to be perfect in this world, but we all have to try.
Coffee, refuah shleima!!!
Reb. LOL (not) I have the same problem, a extra snack is no good for a diet… I try to cover less for the meal b4 I exercise. How much do you drop, more than 100 points?
Reb. Maybe you should have a fruit before exercising. It helped me. I stopped dropping too low when I ate a fruit about 1/2 hour before. Exercise is great for lowering bg. You’re on the right track!
Princess: It’s harder for diabetics to lose weight and lower bg. Did you ever think of going vegan? Try googling Dr. Neal Barnard. I’m vegetarian for 2 years & vegan for 6 months. My A1C’s have dropped about 1 whole point. Good luck!
cofee- i am with you. our generation is different than the one before. they were more tough and able to handle “tough love”. for us we need encouragement and that’s what we are here for. to motivate. we are trying to keep things under control, but we don’t always succeed. our bodies are hard to understand. we don’t just give up, we are trying. we are watching what we eat. i think that you are doing great and keep up the good work!!!!!!!!!!!!
🙂 🙂 🙂 🙂 🙂 🙂 🙂 🙂 🙂 🙂 🙂 🙂
Wow – 8 hours and no posts?!!!
Gr82bagrandma – do you get a welcome (or are you too an old member?!) A vegan isn’t gonna work for me at this point..
Cofee! ????? ????!! So sorry to hear! Esp about the exercising part which you can’t do FOR THE MOMENT..
Reb – i really hope you work out what to do for exercising, for sure it’s a shame to eat esp! Did you try what Forever1 suggested?
Dx3 – your words are so good, keep them coming!
Just wanted to clarify something, my doctor wants to take away my pump because IF i’m not taking insulin than there is no purpose on my being on a pump. Although they strongly advise me not to do something so dangerous they say that it is my choice to do as i want. That particular conversation ended, “See you in the ICU”. Thank G-d i’m still alive and kicking and didn’t end up in ICU! Good idea of not – i have to get my D in control to have a life of control. I tend to go higher at evenings when i have the time for food and the fear of taking too many units. But the rest of day have so far been pretty good. MAY IT ONLY LAST!!!!!
Reb- When I do vigorous exercise that makes me go really low -which btw doesnt happen too often, I eat a meal before without covering for it or only covering for lets say half of it. This way I avoid the low and at the same time avoid having to eat an “extra” snack and offset the exercise. Try it say, after breakfast??!
princess- The fact that your saying that you tend to go higher in evenings is a good sign cuz it means your numbers are better if your noticing the high now! 🙂 KEEP IT UP! If you have a fear of using insulin it means your thinking of insulin as the enemy! Dont think that way. Insulin is a wonderful tool that can and WILL help you live a normal, healthy, and iyh long life. It is in no way an enemy- not even for weight gain! Weight gain is from food not from insulin! Please, please cover your carbs with appropriate insulin and I think that once you have your D under control you’ll feel much better about yourself and you’ll have an easier time losing weight :)))
WE CAN DO IT! WE CAN DO IT!
princess- allsgr8 said it very well.
kepping your numbers good is the first part. once you have your carb ratio set then you can go down on the carbs and eat a little less.
dr. goldman is of the opinion that one should barely eat any carbs. i tried it for one day and gave up. however you do try not to overdo it on the carbs.
meaning: if you carb ratio is a little off the more you eat the bigger the difference in what your supposed to get.
so keep it up and DON’T GIVE UP!!!
i do drop close to like 100 points…so maybe i’ll try and eat a full meal and not bolus..well see..
rebbetsin, watch out!doing exercise without insuline in your body, will do the opposite, it raises your bg!
I hed such experience, and it was confirmed by rav meisels.
anyone here on glimepride?
- You must be logged in to reply to this topic.