Reply To: PANDAS

Health, I didn’t say I didn’t understand your post- I said I could not see it because it was still under moderation last time I was on here. As I mentioned, my son did have an acute infection- a positive throat culture, actually his second in 2 months and was put on the antibiotics for that. By the way, the antibiotics of choice – azithromycin- is believed to be effective not only because it kills the strep bacteria, but also because it has some neuro-protective effect as well, so it actually goes to the root of the problem- the autoimmune attack on the brain.
The issue is how long to continue the antibiotics- the protocol I got from a practitioner who is up on the latest research- who actually is part of the latest research – is to continue until symptoms subside and then slowly taper the dose.
There are those who are on low dose antibiotics as a prophylactic to prevent future strep infections. While I understand the feeling that you don’t want your child to ever go through this again, I also don’t want to destroy him with antibiotics either. B”H I don’t think his case was as severe as some of the cases I have been reading about to warrant such an approach.
I was considering CBT, but the therapist told me he would not do treatment unless he had a clear-cut medical diagnosis. Now that he has one, B”H he is doing much better, so so far I have put therapy on hold to see how it plays out. It is definitely something I would consider though.